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Sam, Max, Harri, Toby and Harrison's fundraising page for the PVRI
Sam, Max, Harri, Toby and Harrison's Page
Story
Last year Sam, Max, and Harri completed the London Tough Mudder to raise money for the Pulmonary Vascular Research Institute (PVRI). They did an amazing job raising an incredible £3,742 putting them in the top three Tough Mudder fundraisers of 2023. This year they are back bigger and stronger as they are joined by Toby and Harrison. The five boys are already in training in preparation for the 10K Tough Mudder South East in April 2024.
So, why are the boys taking on this challenge again?
They want to make a different in support of Bex, Sam’s 18 year-old sister. Bex has Pulmonary Hypertension (PH), having been diagnosed when she was just 11. PH causes high blood pressure in the lungs and living with this disease is not easy as Bex has to wear a large, heavy pump at all times which administers medicine through an IV line straight into her main artery. She cannot be disconnected from this pump at any point as the medicine she receives keeps her arteries open allowing the blood to flow around her body. Without this continuous infusion, her arteries would start closing up. To describe PH in simple terms, it’s like living your everyday life breathing through a straw. As well as her IV medication, Bex takes a cocktail of oral drugs. We want to find better treatments, or better still, a cure for this horrible disease and that is why we are raising money for the PVRI.
PH, more commonly described as high blood pressure in the lungs, is a rare but fatal illness, often mis- or undiagnosed. It can affect people of all ages, including fit young athletes. The PVRI’s vision is to reduce the global burden of pulmonary vascular disease within the next two decades. They will achieve this through global collaboration, striving for excellence in clinical care, research and education.
Please support our efforts by making a secure online donation and by posting a message of support. Donations made through this platform are secure and will be remitted directly through to our charity of choice. Thanks so much for your support. Sam, Harri, Max, Toby, Harrison, and Bex.
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Pulmonary Vascular Research Institute
The Pulmonary Vascular Research Institute (PVRI) is a global membership charity that believes too many people needlessly suffer from pulmonary hypertension - a rare but potentially life-threatening condition. It advocates for pulmonary vascular diseases to be better understood and better resourced worldwide to improve healthcare professionals' understanding of the condition, and in turn, the speed of diagnoses, treatment and care for patients. To enable this, the UK-based charity connects medical and scientific experts, pharma and regulators from across the globe through high-quality and inspirational face-to-face and online events to share cutting-edge research and drug development. Members of different industries across the globe work collaboratively through regional and specialist groups to increase their knowledge and understanding in specifically identified areas of pulmonary vascular disease. All funds raised for the PVRI will go towards furthering research and understanding, particularly in lower-income countries, to improve diagnoses and care for patients.
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